@thelilyfoundation
[NEW] Guide to Mitochondrial Disease
[NEW] Guide to Mitochondrial Disease
Our guide has been created to help newly diagnosed patients understand mitochondrial disease and find support.
Lily
Donate Today - The Lily Foundation
Donate Today - The Lily Foundation
A donation from you will help fight mitochondrial disease and bring hope to everyone affected by it.
Lily's Story
Lily's Story
Discover how Lily's story turned heartbreak into hope for families facing mitochondrial disease.
Events
The Lily Burlesque Ball 2026
The Lily Burlesque Ball 2026
Tickets are now on sale for this, our most anticipated event of the calendar. The Lily Foundation Ball is returning in 2026, and it’s set to be our most spectacular celebration yet – with comedian Dominic Holland just announced as our host for the evening!
Lily Comedy Night 2026 - The Lily Foundation
Lily Comedy Night 2026 - The Lily Foundation
The laughs are back – the Lily Comedy Night returns! Join host Kevin Day and comedian Marcus Brigstocke, plus more top comics yet to be unveiled, for an unforgettable night of fun and fundraising – all to support families affected by mitochondrial disease. Tickets now on sale!
Research
Research Zone
Research Zone
Your hub for the latest news, views and breakthroughs in mitochondrial disease research. categories: Research on the road,Researcher spotlight,PPIE round-up,Science unwrapped,Journal club,Trials hub
Make an IMPACT
Make an IMPACT
Join IMPACT, The Lily Foundation’s virtual committee for those affected by mitochondrial disease. Share your insights to shape research, care and treatments.
Events
Find an Event
Find an Event
Choose a charity challenge and help us raise vital funds to find a cure for mitochondrial disease.
Social Media
Instagram
Instagram
Facebook
Facebook
Youtube
Youtube
The Lily Foundation’s vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure. Mitochondrial disease, or mito, is a rare, complex and incurable genetic disorder that affects people in different ways, often affecting babies and young children. We’re the UK’s leading mitochondrial disease charity, and the largest charitable funder of mitochondrial research in Europe. Our charity was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at 8 months old. Finding little in the way of specialist knowledge or support to help her, Liz set out to provide answers for herself and others in her situation. What began as an informal network of family and friends has grown into a national charity run by a small team of dedicated staff. Today we support over 1300 families, work tirelessly to raise awareness of this rare disease and fund research into treatments and a cure.
Twitter / X
Twitter / X
LinkedIn
LinkedIn
Research Information
Lily Diagnostic Project
Lily Diagnostic Project
Two years ago, The Lily Foundation proudly announced funding for a pioneering research project aimed at improving diagnostic rates for complex cases of mitochondrial disease. Today, the Precision Diagnostics project is moving at pace, with recruitment sites now opening across the UK.
The Lily Research Project
The Lily Research Project
Two years ago, The Lily Foundation proudly announced funding for a pioneering research project aimed at improving diagnostic rates for complex cases of mitochondrial disease. Today, the Precision Diagnostics project is moving at pace, with recruitment sites now opening across the UK.
Shop
Shop Merchandise - The Lily Foundation
Shop Merchandise - The Lily Foundation
Categories - Shop - The Lily Foundation