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cebMy first post-pandemic MRI for MS monitoring came back showing new lesions (2 in 5 years) and the consultants recommended I change drugs. The things I was offered are all a step up in effectiveness but also come with varying levels of immunosuppression.
After much consideration I have ended up with cladribine, which is effectively several rounds of mini-chemo. The idea as I understand it is that it knocks out your rogue white blood cells in the hope they grow back better. There's a week's worth of pills at the start of months 1, 2, 13 and 14 which come by courier in boxes marked CYTOTOXIC!!!!11! They have been fine in terms of immediate side-effects but I have fingers crossed that I'm not going to get shingles.
Anyway I am low on white blood cells at the moment and for the next couple of months, expecting to start making inroads into the real world in March-ish. Also this time next year. Anyway that's why I'm hiding from builders.
(And now I have written all this and also done my art exhibition proposal submission and it's my day off so now I'm going to go and play Hades.)
After much consideration I have ended up with cladribine, which is effectively several rounds of mini-chemo. The idea as I understand it is that it knocks out your rogue white blood cells in the hope they grow back better. There's a week's worth of pills at the start of months 1, 2, 13 and 14 which come by courier in boxes marked CYTOTOXIC!!!!11! They have been fine in terms of immediate side-effects but I have fingers crossed that I'm not going to get shingles.
Anyway I am low on white blood cells at the moment and for the next couple of months, expecting to start making inroads into the real world in March-ish. Also this time next year. Anyway that's why I'm hiding from builders.
(And now I have written all this and also done my art exhibition proposal submission and it's my day off so now I'm going to go and play Hades.)
no subject
Date: 2025-01-09 03:24 pm (UTC)no subject
Date: 2025-01-09 05:06 pm (UTC)no subject
Date: 2025-01-09 05:27 pm (UTC)I hope it does what it's supposed to do, and the shingles stays away. <3
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Date: 2025-01-09 07:42 pm (UTC)no subject
Date: 2025-01-10 08:13 am (UTC)no subject
Date: 2025-01-10 06:47 pm (UTC)no subject
Date: 2025-01-11 07:10 pm (UTC)no subject
Date: 2025-01-13 10:20 pm (UTC)I was, however, just thinking of you the other day. And thinking that I am no longer ever in the places where I used to see you, and that is a shame, so I am very glad to see some words from you.